{"id":59991,"date":"2024-02-29T18:18:41","date_gmt":"2024-02-29T18:18:41","guid":{"rendered":"https:\/\/sertv.gob.pa\/crisolfm\/?p=59991"},"modified":"2024-02-29T19:12:14","modified_gmt":"2024-02-29T19:12:14","slug":"constante-actualizacion-en-css-para-atender-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sertv.gob.pa\/crisolfm\/constante-actualizacion-en-css-para-atender-enfermedades-raras\/","title":{"rendered":"Constante actualizaci\u00f3n en CSS para atender enfermedades raras"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1144px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p><strong><em>Para atender a los pacientes con enfermedades raras, la Caja de Seguro Social de Panam\u00e1, actualiza constantemente a su personal, destina un presupuesto y realiza diagn\u00f3sticos en cl\u00ednicas gen\u00e9ticas.<\/em><\/strong><\/p>\n<p><strong><em>En el D\u00eda Mundial de las Enfermedades Raras, el director m\u00e9dico del Instituto Nacional de Trasplante, Dr. Dimas Quiel, dijo que, est\u00e1n preparados para diagnosticar la gran mayor\u00eda de las enfermedades cong\u00e9nitas hereditarias.<\/em><\/strong><\/p>\n<p><strong><em>Precis\u00f3 que, una de las enfermedades raras m\u00e1s atendidas, es la hemofilia y la misi\u00f3n principal es atender al paciente para que no quede encamado e incapacitado por un da\u00f1o articular cr\u00f3nico.<\/em><\/strong><\/p>\n<p><strong><em>La CSS, hace constantes actualizaciones sobre el comportamiento de las Enfermedades Raras, que afectan a cinco de cada 10 mil personas en el mundo.<\/em><\/strong><\/p>\n<p><strong><em>En tanto, la doctora en nefrolog\u00eda, Karen Courville, se\u00f1al\u00f3 que, a nivel nefrol\u00f3gico, existen dos enfermedades raras que afectan los ri\u00f1ones y que son atendidas por la CSS.<\/em><\/strong><\/p>\n<p><strong><em>\u201cLas enfermedades raras son detectadas, usualmente, en edad pedi\u00e1trica y se da en ni\u00f1os cuya sintomatolog\u00eda es poco usual. Son los m\u00e9dicos los que est\u00e1n capacitados para hacer el diagn\u00f3stico y recomendar el tratamiento\u201d, explic\u00f3.<\/em><\/strong><\/p>\n<p><strong><em>A nivel nefrol\u00f3gico, la CSS registra cinco pacientes con el S\u00edndrome Alport, una enfermedad que afecta la vista, el o\u00eddo y el ri\u00f1\u00f3n. Adem\u00e1s, atiende a tres pacientes con la Enfermedad de Fabry, que afecta el coraz\u00f3n y el ri\u00f1\u00f3n.<\/em><\/strong><\/p>\n<p><strong><em>\u00a0<\/em><\/strong><\/p>\n<p>Fuente: CSS<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":9,"featured_media":59993,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12],"tags":[],"class_list":["post-59991","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nacionales"],"_links":{"self":[{"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/posts\/59991","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/comments?post=59991"}],"version-history":[{"count":2,"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/posts\/59991\/revisions"}],"predecessor-version":[{"id":59997,"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/posts\/59991\/revisions\/59997"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/media\/59993"}],"wp:attachment":[{"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/media?parent=59991"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/categories?post=59991"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sertv.gob.pa\/crisolfm\/wp-json\/wp\/v2\/tags?post=59991"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}